Plastic and reconstructive surgery. Global open
Development of a Patient-reported Outcome Measure for Adults with Lower Extremity Malignancies: The LIMB-Q ONC
By Heron MJ, Drogt C, Zhu L and 5 others.
Abstract
Background
Sarcomas are rare but aggressive cancers, and their treatment can have profound effects on quality of life. We sought to develop and establish the content validity of the LIMB-Q ONC, a novel patient-reported outcome measure (PROM) for adults with lower extremity malignancies, designed to reliably capture the impact of these cancers on patients.
Methods
Following international guidelines for the development of PROMs, we created a preliminary LIMB-Q ONC by adapting the LIMB-Q scales and incorporating 2 cancer-specific scales from the BREAST-Q. Content validity was evaluated through cognitive debriefing interviews with patients and feedback from subject experts. Comments were used to refine a final instrument.