"This is going to be a nice-to-know, not a need-to-know": absence of concern - a qualitative study of risk perception in early detection of type 1 diabetes

Background

Type 1 Diabetes (T1D) is a chronic and demanding condition. In recent years, the development of immunomodulatory therapies has increased interest in early detection programs, which may delay disease onset and enable psychological preparedness. However, such programs also introduce new psychosocial considerations. This study explores how first-degree relatives of individuals with T1D perceive and experience participation in an early detection program.

Methods

Semi-structured interviews were conducted with 28 adults aged 18-42 years participating in a Danish early detection program for T1D (DiaUnion). Data were analyzed using reflexive thematic analysis to explore patterns related to risk perception and meaning-making.

Results