A Co-Developed Evaluation Framework for a Patient Engagement Programme Within a National Dementia Research Network

Introduction

While there is growing consensus on the importance of engaging people with lived experience in research, there is little agreement on how best to evaluate these initiatives. Co-designed frameworks tailored to specific contexts have been recommended. Our objective was to co-develop an evaluation framework to assess the implementation and impact of the Canadian Consortium on Neurodegeneration in Aging (CCNA)'s Engagement of People with Lived Experience of Dementia (EPLED) programme.