Enfermería Cuidándote
Care for children in advanced and/or terminal stage of his disease in primary care: literature review
By Lucía Gil Jiménez.
Abstract
Introduction
Palliative care emerged through the work of Cicely Saunders. To provide such care, she created hospices and introduced the concept of “total pain” to address the complexity of patient suffering. Years later, palliative care was introduced in Spain by Marcos Gómez Sancho and, there was created the Organizational Model as a system to deliver care effectively. Paediatric palliative care was, years later, also originated through Cicely Saunders. In Spain, there is currently no specific regulation for paediatric palliative care, although there are some references that address it. In primary care, palliative assistance is provided to all individuals regardless of age, in line with the Alma-Ata Declaration.
Objective
Knowing the children´s holistic care in their advanced and terminal stages of their illness at the primary care setting. Metodology: This work is a narrative and scientific literature review. 21 studies were used from various databases: CuidenPlus, PubMed, the Spanish Ministry of Health, the Andalusian Regional Ministry of Health, PedPal, World Health Organization, ASPANION, the Regional Institute of Health Management, the Spanish Association of Palliative Care Nursing and Google Scholar.