A tool to evaluate the impact of lived experience involvement in research: the Brain and Genomics Hub Impact Log protocol

Background

Despite widespread recognition of the value of lived experience involvement (LEI) in healthcare research and increased LE involvement activity, we lack established implementation methods and instruments for reporting and evaluating impact. We present a protocol for an innovative LE-led Impact Log tool and LEI framework, which may help to address some fundamental barriers to LEI. The Impact Log will be implemented within a five-year multidisciplinary transdiagnostic research project on severe mental illness and is also designed for wider adaptation and use. We include a short literature review on LEI impact, to provide in-depth background.